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Photo Credit: Brooke Lewis Photography

     Hi there and welcome to Our Life After the NICU! I’m mom (Jenny) to arguably the toughest kid in the world, Conner (Con-Man). We live in Tulsa, Oklahoma.  Conner was born at 24 weeks and considered a micro preemie. He weighed 1lb 6oz at birth, but little did we know how strong he’d truly be. Conner is the younger brother to his late twin, Caden, and our Australian Shepherd, Fenway. Conner spent six and a half months in two Neonatal Intensive Care Units before finally making his way HOME. He continues to defy the odds with a smile on his face no matter what challenges are thrown his way. We’d love for you to follow along through our past NICU journey and more importantly, our life after the NICU.

Conner's CaringBridge ➔

Our NICU Journey ➔

About Conner ➔

SAVING FOR YOUR CHILD 
Are you worried about your child financially long-term? What if something happens to you, how are they going to get what they needs? Do you have family or friends that want to support your child financially somehow? Are you jus
FUNDRAISING & GRANTS So, insurance will not cover your intensive or they don’t cover enough of it, so you need to come up with the rest of the funds. We get it. Paying for therapy plus travel, accommodations, meals, etc. for 2-3 weeks is
What if my insurance says a therapy clinic is out-of-network? We all just recently learned about this (thanks, @napacenter ), but you can apply for GAP coverage (your insurance may call it in-for-out) which basically means that if its approved, they
Does insurance cover intensive therapy? This is a popular question and rightfully so. Kids are expensive, having a child with a disability can be difficult financially. We wish the answer to this was a little more cut and dry. Insurance varies by f
We all sit there, In the pressure that is. The pressure to keep up, the pressure to perform like other families, and the pressure to check all of the boxes. I find myself there more often than I would like to admit. When we started this journey, I di
I asked you today, what drains you on a daily basis? The responses were as follows: daily tasks, no alone time, communication or lack there of, making decisions, not being enough and not just getting to be mom. When I read them my heart sank. So ma
SELF CARE: What does that even look like as a special needs parent? We spend most of our days as moms, therapist, care takers, chauffeur, cook, house keeper, nurse and the list goes on. For me (Morgan) I felt myself spiraling with my everyday mundan
Hope. As a family, being impacted by disabilities can feel, well debilitating. Whether it’s a severe physical disability, newly autism diagnosis, learning disability, genetic diagnosis, or terminal illness. It can feel suffocating. BUT...the